is a national charity set up as a result of the constructive
dialogue encountered with members of the health profession, leading
up to, and during the time of the BRI
Public Inquiry. The aim of the CDCA is to repair
trust between patients, the medical profession and the
NHS, with a view to making both users and providers of the NHS
present, the CDCA, together with the Children's Heart Federation,
the British Paediatric Cardiac Association, and the British
Paediatric Cardiac Nurses Association have published A
Guide to Care Standards for paediatric cardiac services.
This guide is a
proposed minimum standard that a patient and their family should
expect from the cardiac services team. Much of the guidance is
already in place in all paediatric cardiac units and hopefully
reflects the practical, physical and emotional journey which
children with congenital heart disease and their families undertake.
website aims to be an interactive medium allowing this charity,
patients and their families and professionals of the health industry
to communicate constructively. You can contact this charity, view
our publications in the media, test your own perceptions of the NHS,
and interact with other professionals and patients in our forum. If
you have any comments, stories or suggestions yourself, then please
do not hesitate to contact us.